Combating Ehlers Danlos Syndrome With Bodysuit Shapewear
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Ehlers Danlos Syndrome, also known as “Cutis hyperelastica”, is a rare condition where there exists a defect in the synthesis of collagen. This inherited disorder has no quick fix or elixir because the severity of the condition can range from benign to malicious. If defined in base terms, “cutis hyperelastica” is extreme hyper mobility, which is defined by joints which bend this way and that, leading to constant dislocation of joints due to lack of muscles and collagen. Different ranges of hyper mobility exist and studies show that 1 in every 10,000 or 15,000 is afflicted by any range of hyper mobility.
Two Doctors, Edvard Ehlers of Denmark, and Henri-Alexandre Danlos of France, defined this condition at the turn of the 20th century.
Examples of hyper mobility would be circumstances where one can bend their toe fingers all the way down or rotate their arm out of it’s socket and bring it back.
A 3 year old girl in the U.K. was born with an extremely acute type of this condition. Three year old Olivia Court, afflicted with the incredibly severe form of this condition, has been through two hip surgeries and has been taken to countless doctors and surgeons in order to find a way to help her walk .
At the age of 1 when she still could not sit up or crawl like other children her age, Olivia’s parents, Lena, 36, and Adrian, 41, a security engineer, based in Earl Shilton, Leicestershire did the rounds of doctors to figure out what was solution for their daughter. After meeting countless numbers of doctors and surgeons they went through with the two hip surgeries. However, Olivia would end up with a dislocated hip, even when wearing a cast for eleven months that covered her from her chest to her knees.
With incredibly weak muscles that could not support her joints, Olivia could not walk, sit up, or even crawl. After the two corrective hip surgeries, the doctors and surgeons gave up on Olivia’s condition.
Despite being told that Olivia could never take steps, Adrian and Lena stubbornly searched for an answer to her problem.
A solution finally came from a surgeon. Something attune to shapewear was suggested for Olivia. Despite having found an answer, the bodysuit was way out of their budget. At £2,500, this second skin like bodysuit would be able to hold her muscles together allowing them to strengthen enough to hold her joints together.
However, the Courts were disheartened when they learned that the local NHS Trust would not fund the bodysuit since there was not enough medical evidence to support it’s effectiveness. Thankfully, a local community group raised the money.
The bodysuit must be worn 5 days a week, 8 hours a day. Because of the suit, which is made of Lycra, Olivia is not able to lead a normal life.
She now is able to attend nursery regularly without having to stay in bed from chronic fatigue.
Although a new way to treat extreme mobility, it seems bodysuit shapewear has brought about a possible solution.
Tags: natural healingremedies, natural remedy for arthritis, natural home remedy
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